The national nonprofit organization discusses the incorrect information on medical shows and makes suggestions, just in time for Rare Disease Day.

Dear Friends, This year, the trustees of the Kristen Ann Carr Fund re-learned what lives are really all about, through the wonder of Sasha’s first child, Weston Kristof Carr. Wes reminds us, every day, what an individual life means, how irreplaceable it is, and how beautiful. Individual lives are what the Kristen Ann Carr Fund’s…

The inaugural New England Sarcoma Symposium, a joint effort between the Roger Williams Cancer Center and the Kristen Ann Carr Fund, took place in March, 2011 in Providence, Rhode Island. The academic program was designed to benefit a broad range of cancer experts, including surgeons, medical oncologists, gastroenterologists, and the corresponding trainees, placing special emphasis…